This may seem like an odd post, but it is something that has been bothering me for a while and it is that I have gained 35lbs since the start of my CRPS. For as long as I can remember I have had a problem with my weight management, but nothing like this. It’s like I have absolutely no control over my eating habits. I do not know if this is just me or do other CRPS spoonies deal with it? There really is a reason it’s called COMPLEX Regional Pain Syndrome, no matter what I learn about it, there is just so many layers and complexities to it.

I have spoken with my doctors and they seem to think that this is normal, when everything that I am dealing with is taken into consideration. It is my understanding that the combination of CRPS, the medications and the more sedentary than usual lifestyle, that is a recipe(pun intended) for weight gain.

So, as with most symptoms and side effects, it is easy to just say “just part of the CRPS life”, but unfortunately I feel that the weight gain needs to be taken more seriously. Weight gain can lead to other issues like heart disease, high blood pressure, high cholesterol, diabetes and many other serious issues that can shorten my life considerably.

The most serious parts of my eating issues are eating at night and sugar cravings. When I have insomnia, I get very hungry at 1 or 2 in the morning, so I have a sandwich or some other unhealthy nighttime food. I have never had nighttime eating problems before. I am not going to say I have never eaten at night, but it was very occasional when I did. I find myself lying in bed trying to get to sleep and I just can’t get food out of my mind. The other issue is sugar cravings, it is almost a constant craving that I have for sweets, mostly chocolate. I normally like chocolate but over the past few years, my wife and I have really done our best to keep our sugar intake down. CRPS, Complex Regional Pain Syndrome formerly RSD can cause weight gain as one of the many side effects

I have read many articles that explain CRPS is not a life-threatening disease, which is true, but this condition CAN cause other problems that can kill you. We need to do everything in our power to not assist in our own demise. In order for our entire bodies and minds to be healthy, we need to do the things any normal human being needs to live a long life. That is good sleep, eating healthy, exercising regularly, keep sugar and carb intake to a minimum, don’t drink, don’t smoke…and so on, you got the picture. Control what we can and do not stress about the things out of your control.

Promise yourself that you will exercise for 15/20/30 minutes a day, whatever is a good amount for you. Each day do a little more and keep it rolling. Have a carbohydrate-less dinner, have an extra serving of vegetables, drink more water and no dessert.

Have a carbohydrate-less dinner, have an extra serving of vegetables, drink more water and no dessert unless it’s fresh fruit. Do not diet, just curb some things.

To be honest, I do not know what to do about eating past midnight. I will keep trying my best to just stop it altogether, but I am not sure if I can stop. I won’t give up trying.

Thanks for reading, we are never alone.


18 Replies to “Weight Gain…”

  1. Well bud u have done it AGAIN give me more answers to my weird behavior since getting this I’ve gotten to where I eat more at night as well or rather in the early morning hours like 2 or 3 in the morning I thought it was just because I sit up late at night but as far as the exercise what I do is during the spring and summer I walk my big dog Cherokee see i live in a small down on a dirt road so I take him walking

    1. I wasn’t sure about writing this one, I am self-conscious of my weight. But, I felt with this blog I have to lay it all out there. AND I am sitting here with tears in my eyes, that someone else has this too.

        1. Boom, mind blown. I have no idea. If I was to guess, I would say yes, it’s not a blood disease so donating shouldn’t matter. I will have to research this. If you find any info on it, let me know.

  2. I think you can give blood; however, I would worry that the big needle they use for blood collection could cause a flare or spread. I have been advised that ANY time I have blood drawn to make sure it is absolutely necessary and to request the use of a “butterfly” needle. If you are ever in the hospital (inpatient) for ketamine, you are most likely to get a PICC line to avoid repeated needle sticks.

    1. Oh no kidding! I did not even think of that, I get bloodwork done every 3 months for cholesterol and the such. Is the ‘butterfly’ needle different than the needle they use for that?

  3. As for weight gain….personally I”m finding it kinda hard to judge as the edema changes everyday. At its ‘minimum’ I’d say my edema adds at least 7 lbs and up to 25lbs at its worse days!!!

  4. I have gained 30 frustrating as I have not changed my eating and I walk every day…it is so depressing! Help!!

    1. I understand. The extra weight sucks and compounds being unhealthy. Stick with the good eating and walking, it can only benefit you.

  5. I know it’s been awhile since this post but I am very happy to have found it thank you. Yes yes yes! Late night eating has been a big issue for me! I gained 25 lbs in a year because of it. When we sleep well we actually burn more calories, since we cannot get into a really good deep sleep for a good 6 to 8 hours we are no longer burning as many calories as we should. On top of that at 1, 2 in the morning I find that I can sleep if I eat something, so why fight it if it helps to get a little sleep.

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